Usher syndrome has taught me so much. We have good days and days that challenge us. This week has been filled with challenges.
Lane McKittrick presented her research at the Council for Exceptional Children Conference in Tampa Feb. 9, 2018.
Mark your calendars for Saturday, March 24, 2018 for the Hear See Hope comedy auction at the Triple Door!
A Proposal for the Hear See Hope Foundation
Understanding Cone Degeneration in Usher Syndrome And Retinitis Pigmentosa
Gov. Jay Inslee declared Sept. 16, 2017 Usher Syndrome Awareness Day in Washington. We wrote to the governor and asked him to join other states in making the proclamation to draw attention to Usher and the many families it affects in our state and country. Conner was so proud to hold the proclamation. This is just one step in our advocacy efforts, but it’s an important one.
Many people don’t know about Usher – and that it’s the leading cause of deafblindness in the nation. We hope to make this an annual proclamation. Thanks to Gov. Inslee for his support of our cause.
Thanks to everyone who attended our 2017 Sensation Dining in the Dark event.
This will be a spiritual journey for my wife and I, but it will have an added dimension . . . we are walking for a cure to Usher Syndrome!
A classical piano concert benefitting Usher Syndrome.
Thanks for attending our annual auction on Saturday, March 5, 2016 to help us raise money to find a cure for Usher Syndrome, the leading cause of deafblindness in the United States.
Renowned Seattle Chef Tom Douglas headlined this Sensational Dining in the Dark experience.