We work harder than ever to support research to find a cure for our sons and all of those with hearing and vision related disorders like Usher Syndrome.
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Hello. It was nice coming upon your web site. I myself have Ushers and so does my sister. I was born with hearing loss.
Bella leads a happy life with few limitations at the moment, so that’s where we focus. Tomorrow is always uncertain, especially with Usher syndrome, but for today life is good.
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