Hear See Hope
  • Home
  • Donate
  • Events
    • USH PNW Social 2023
  • Who We Are
    • Contact
    • Join Our Mailing List
    • Accessibility
  • About Usher Syndrome
    • Videos
    • Research
  • Blog

Blog

Introducing Lane of Inquiry

1/20/2021

0 Comments

 
Picture
Lane of Inquiry’s mission is: To serve the deafblind community through expanding and bringing to practice family educational research specific to deafblindness.

Read More
0 Comments

January 2021 Hear See Hope Update

1/20/2021

1 Comment

 
Picture
Happy New Year. We hope you and your families and friends are staying safe and healthy during these uncertain times. What a roller coaster we’ve all been on.

Read More
1 Comment

Conner shares his journey to acceptance

12/6/2019

0 Comments

 
Conner & Lane in a pumpkin patch smiling
Being Conner’s mom is such a joy for me. He has overcome huge obstacles and works so hard to achieve his goals. I can’t believe it’s almost time for him to head to college. ​

Read More
0 Comments

Guest podcast with Portland State

12/1/2019

0 Comments

 
As part of my efforts to help more families dealing with Usher syndrome, I was happy to be interviewed by Professor Amy Parker of Portland State University for her Orientation and Mobility On the Go Podcast. In this podcast, I share insights with Amy about the role of the Orientation and Mobility Specialist in supporting the development of self-determination skills from my perspective as a mother and from the perspective of a graduate researcher. I include practical advice for O&M students and practitioners for working with individuals, families and teams. You can listen to the podcast or read a transcript. Thanks, Professor Parker, for the opportunity.
0 Comments

IEP Experiences Podcast

11/29/2019

0 Comments

 
I’m excited to share my podcast about raising two sons with Usher syndrome. In my first episode, I tell you a little about my family, and our experience working with IEP teams. It can be stressful trying to advocate for your child, and I have learned a lot along the way about working with schools to support my sons Conner and Dalton. One of the best things we did was allow our kids to have input into their their IEPs, so I talk about the benefits of student involvement. My hope is to provide support, guidance, and advocacy for other families.
Listen on Anchor. Or you can read the transcript.
0 Comments

Presenting research at the DbI Network of Americas conference

10/31/2019

0 Comments

 
Lane presenting with 2 colleagues at the Dbl Network of Americas conference
I had the privilege of attending and presenting at the first-ever Network of the Americas Conference sponsored by Deafblind International and Perkins School for the Blind.

Read More
0 Comments

We were honored to receive the Foresight Award

10/10/2019

0 Comments

 
Todd and Lane receiving the Foresight Award
Todd and I were so honored to receive the Foresight Award from the Usher Syndrome Coalition in 2017.

Read More
0 Comments

Raising Awareness about Usher with our lawmakers

7/31/2019

1 Comment

 
Lane and Todd with Senator Patty Murray
Todd and I met with Sen. Patty Murray in 2015 to educate her about the disease and the many families it affects.


Read More
1 Comment

THE KILIMANJARO CLIMB FOR USHER SYNDROME

8/25/2018

0 Comments

 
Picture
Our awesome climbers made it to the summit! Their journey signifies both the uphill battle against Usher syndrome and the power of persistence. We are so proud of them. Honor their commitment with a donation.

Read More
0 Comments

I’m so grateful for our USH family

4/21/2018

0 Comments

 
Dalton with Usher advocate Rebecca Alexander at a Yankees game
Dalton was thrilled to meet Usher advocate Rebecca Alexander, who has never let Usher syndrome hold her back.
I just returned from a trip to New York and New Jersey with Hunter and Dalton, and I have been reflecting on where we are in our journey living with Usher Syndrome.

Read More
0 Comments
<<Previous

    Archives

    January 2021
    December 2019
    November 2019
    October 2019
    July 2019
    August 2018
    April 2018
    February 2018
    November 2017
    September 2017
    May 2017
    April 2017
    February 2017
    March 2016
    October 2015
    July 2015
    May 2015
    February 2015
    March 2014
    February 2014
    March 2013
    August 2012
    July 2012
    May 2012

    Categories

    All
    Past Events
    Research Grants
    Research News
    Tell Your Story
    Usher Syndrome Coalition
    UW Medicine
    Videos

    RSS Feed

USH Partner logo

Mailing Address

17837 1st Ave So, PMB 2
Normandy Park, WA 98166

Office

1800 SW 152nd Street
Burien, WA 98166

Contact

Phone: 206-258-3028​
​Fax: 206-299-9519
​Email: info@hearseehope.com
  • Home
  • Donate
  • Events
    • USH PNW Social 2023
  • Who We Are
    • Contact
    • Join Our Mailing List
    • Accessibility
  • About Usher Syndrome
    • Videos
    • Research
  • Blog