 Happy New Year. We hope you and your families and friends are staying safe and healthy during these uncertain times. What a roller coaster we’ve all been on.
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 Being Conner’s mom is such a joy for me. He has overcome huge obstacles and works so hard to achieve his goals. I can’t believe it’s almost time for him to head to college.
As part of my efforts to help more families dealing with Usher syndrome, I was happy to be interviewed by Professor Amy Parker of Portland State University for her Orientation and Mobility On the Go Podcast. In this podcast, I share insights with Amy about the role of the Orientation and Mobility Specialist in supporting the development of self-determination skills from my perspective as a mother and from the perspective of a graduate researcher. I include practical advice for O&M students and practitioners for working with individuals, families and teams. You can listen to the podcast or read a transcript. Thanks, Professor Parker, for the opportunity.
I’m excited to share my podcast about raising two sons with Usher syndrome. In my first episode, I tell you a little about my family, and our experience working with IEP teams. It can be stressful trying to advocate for your child, and I have learned a lot along the way about working with schools to support my sons Conner and Dalton. One of the best things we did was allow our kids to have input into their their IEPs, so I talk about the benefits of student involvement. My hope is to provide support, guidance, and advocacy for other families.
Listen on Anchor. Or you can read the transcript.  I had the privilege of attending and presenting at the first-ever Network of the Americas Conference sponsored by Deafblind International and Perkins School for the Blind.
 Todd and I were so honored to receive the Foresight Award from the Usher Syndrome Coalition in 2017.
 Todd and I met with Sen. Patty Murray in 2015 to educate her about the disease and the many families it affects.  Our awesome climbers made it to the summit! Their journey signifies both the uphill battle against Usher syndrome and the power of persistence. We are so proud of them. Honor their commitment with a donation.
 Dalton was thrilled to meet Usher advocate Rebecca Alexander, who has never let Usher syndrome hold her back. I just returned from a trip to New York and New Jersey with Hunter and Dalton, and I have been reflecting on where we are in our journey living with Usher Syndrome.
 Usher syndrome has taught me so much. We have good days and days that challenge us. This week has been filled with challenges. |
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