The leading cause of deafblindness in the United States
Introducing a New Initiative by Lane McKittrick
Lane McKittrick, co-founder of the Hear See Hope Foundation, started a non-profit organization called Lane of Inquiry in 2020. Hear See Hope Foundation is sponsoring this non-profit with a shared 501(c)3 status. Donations to Hear See Hope can be targeted to Lane of Inquiry.
Lane of Inquiry’s mission is: To serve the deafblind community through expanding and bringing to practice family educational research specific to deafblindness.
In addition to being a co-founder of Hear See Hope Foundation and mom to two sons who are Deafblind due to Usher Syndrome, Dr. Lanya (Lane) McKittrick holds a doctorate in Special Education. One of Lane’s passions is to help share her knowledge with families and the educators that support our children. Lane of Inquiry was formed so that she could follow that passion – to more intentionally conduct research that could improve outcomes for children who are deafblind and to relate that research to her experience as a parent.
One of those those struggles has been to ensure Conner and Dalton, Todd and Lane’s children who are deafblind due to Usher syndrome, had the educational supports they needed at school. This is why Lane went back to get her PhD in special education – to find ways to help children like our boys, Dalton and Conner. She enjoys supporting families and conducting special education research specific to deafblindness.
Why deafblindness and not just Usher syndrome?
Usher syndrome is rare but so is deafblindness, which is the cause for a lot of the school struggles. Because it is rare, there is rarely someone familiar with deafblindness in a school or district. Each child who is deafblind, regardless of the reason for their deafblindness, has unique needs. Every parent, regardless of the diagnosis, struggles in similar ways to work with IEP teams to ensure the team understands those unique needs, that understands that a one size fits all approach won’t work.
Thank you to those who have supported Todd and I along our journey. As we launched Hear See Hope we needed you all, and we continue to value your support today. Hear See Hope will continue to raise money for a cure for Usher syndrome. And, Lane of Inquiry will help families ensure deafblind children have the educational support they need. These are both critical needs for the well being of those who are living with Usher syndrome.
Being a parent of children with Usher syndrome can feel isolating at times. I am excited to be able to help families like mine and the educators who support them – to share my research and personal experiences.
Please watch Lane’s video sharing her personal experiences and reasons behind starting Lane of Inquiry. Please follow Lane of Inquiry on social media and help get the word out. And, please sign up for Lane of Inquiry’s newsletter.
HSH partners with Usher Syndrome Coalition
Hear See Hope is proud to partner with the Usher Syndrome Coalition to raise awareness of Usher syndrome, the leading cause of deafblindness in the United States. The Coalition’s mission to raise awareness and accelerate research while providing information and support to individuals and families affected by Usher syndrome ties perfectly with HSH’s mission. Hear See Hope will work with the coalition to be the most comprehensive resource for the Usher syndrome community, bridging the gap between researchers and families. HSH co-founder Dr. Lane McKittrick was featured speaker at the 11th Annual USH Connections Conference. In 2019, Lane became the Chair of the Board of the Usher Syndrome Coalition.