We work harder than ever to support research to find a cure for our sons and all of those with hearing and vision related disorders like Usher Syndrome.
Pilot Project of Population Genetic Studies of Usher Syndrome (funded January 2006)
Development of Methods of Usher Syndrome Gene Therapy (funded January 2007)
Development of Improved Visual Field Testing as an Outcome Measure for Treatment Trials in Usher Syndrome (funded January 2007)
Hello. It was nice coming upon your web site. I myself have Ushers and so does my sister. I was born with hearing loss.
Bella leads a happy life with few limitations at the moment, so that’s where we focus. Tomorrow is always uncertain, especially with Usher syndrome, but for today life is good.
Breaking research news – Gene Therapy provides vision to nearly blind young adults!
The idea to start the Hear See Hope foundation started in August 2004 when our oldest son, Conner (then 5) was diagnosed with Usher syndrome Type 1.
There have been significant breakthroughs in Usher syndrome research in the last few years and there is more hope than ever that a cure is in sight. We are a 501(c)3 not for profit organization in search of funds to sustain the fight against Usher syndrome. Please help us make a difference by supporting us in our fundraising efforts for preventing, treating and curing Usher syndrome.