ABOUT USHER SYNDROME

Usher syndrome is the most common cause of deafblindness in the United States. It is a combination of Retinitis Pigmentosa (RP) and some level of hearing loss. There are about 10-15,000 people with Usher syndrome in the United States today. We are a 501(c)3 not for profit organization in search of funds to sustain the fight against Usher syndrome. Please help us make a difference by supporting us in our fundraising efforts for preventing, treating and curing Usher syndrome.

HSH 2018 Comedy Auction

Join us on Saturday, March 24, 2018 for the Hear See Hope comedy auction! We’re thrilled to welcome comedian Tony V. back for another night of laughs. Join us for an entertaining evening of comedy, food, wine, dancing, and fundraising for a great cause. Help us laugh for a Cure for Usher Syndrome, the leading cause of deaf-blindness in the US!

Register for the 2018 Hear See Hope Comedy Auction

Kili Climb, logo

Climbing Kilimanjaro for awareness, fun, and a cure

Conner McKittrick, his dad Todd, brother Cole, doctors and staff who work with Conner, board members, and friends, are busy making plans to climb Mt. Kilimanjaro in 2018. The goal is to promote greater awareness of Usher syndrome.

“This is going to be a once-in-a-lifetime experience for all of us,” Conner says. “Spending time with the people who have supported and encouraged me – is something I think we’ll all treasure forever.” (Read more . . .)
Make a donation to the 2018 Kili Climb

  • AT HEAR SEE HOPE WE ARE COMMITTED TO OUR MISSION TO HELP FIND A CURE FOR USHER SYNDROME. FOR ALL THE DONATIONS WE RECEIVE, 99% GOES TOWARDS RESEARCH. WE HOPE THAT ONE DAY THERE WILL BE A CURE FOR THE PEOPLE DIAGNOSED WITH THIS DISEASE.