ABOUT USHER SYNDROME

Usher syndrome is the most common cause of deaf-blindness in the United States. It is a combination of Retinitis Pigmentosa (RP) and some level of hearing loss. There are about 10-15,000 people with Usher syndrome in the United States today. We are a 501(c)3 not for profit organization in search of funds to sustain the fight against Usher syndrome. Please help us make a difference by supporting us in our fundraising efforts for preventing, treating and curing Usher syndrome.

Save the date for a Sensational event!

Please join us for the next Sensation Dining in the Dark event on Thursday, May 11, 2017. Renown Seattle Chef Tom Douglas will once again host Sensation, an evening featuring a five-course wine-paired meal. Sensation is designed to help raise awareness about Usher Syndrome, the leading cause of deaf-blindness.

Restoring Vision Loss

Stem cell therapy holds great promise for restoring sight and benefiting patients worldwide.The UW Medicine Eye Institute, the only academic Eye Institute in the five-state WWAMI region (Washington, Wyoming, Alaska, Montana, and Idaho), is at the frontier of developing new techniques to restore vision loss using stem cell therapy.