ABOUT USHER SYNDROME

Usher syndrome is the most common cause of deafblindness in the United States. It is a combination of Retinitis Pigmentosa (RP) and some level of hearing loss. There are about 10-15,000 people with Usher syndrome in the United States today. We are a 501(c)3 not for profit organization in search of funds to sustain the fight against Usher syndrome. Please help us make a difference by supporting us in our fundraising efforts for preventing, treating and curing Usher syndrome.

It’ll be a Sensational Dining Experience!

We hope to see you at our 2017 Sensation Dining in the Dark event on Thursday, May 11, 2017. Hosted at the Palace Ballroom, famous venue of renown Seattle Chef Tom Douglas. Join us for a sensational event evening featuring a five-course wine-paired meal! Sensation is designed to help raise awareness about Usher Syndrome, the leading cause of deafblindness. Register to attend or sign up for a sponsorship here.

Restoring Vision Loss

Stem cell therapy holds great promise for restoring sight and benefiting patients worldwide.The UW Medicine Eye Institute, the only academic Eye Institute in the five-state WWAMI region (Washington, Wyoming, Alaska, Montana, and Idaho), is at the frontier of developing new techniques to restore vision loss using stem cell therapy.

  • AT HEAR SEE HOPE WE ARE COMMITTED TO OUR MISSION TO HELP FIND A CURE FOR USHER SYNDROME. FOR ALL THE DONATIONS WE RECEIVE, 99% GOES TOWARDS RESEARCH. WE HOPE THAT ONE DAY THERE WILL BE A CURE FOR THE PEOPLE DIAGNOSED WITH THIS DISEASE.