ABOUT USHER SYNDROME

Usher syndrome is the most common cause of deafblindness in the United States. It is a combination of Retinitis Pigmentosa (RP) and some level of hearing loss. There are about 10-15,000 people with Usher syndrome in the United States today. We are a 501(c)3 not for profit organization in search of funds to sustain the fight against Usher syndrome. Please help us make a difference by supporting us in our fundraising efforts for preventing, treating and curing Usher syndrome.

Kili Climb, logo

Climbing Kilimanjaro for awareness, a little fun, and a cure

Conner McKittrick, his dad Todd, brother Cole, doctors and staff who work with Conner, board members, and friends, are busy making plans to climb Mt. Kilimanjaro in 2018. The goal is to promote greater awareness of Usher syndrome.

“This is going to be a once-in-a-lifetime experience for all of us,” Conner says. “Spending time with the people who have supported and encouraged me – is something I think we’ll all treasure forever.”

There will be several opportunities to watch the team’s progress via regular video blogs and other social networking updates. The climb is being filmed for a documentary, which will be premiered at an event a few months after it is completed.

Restoring Vision Loss

Stem cell therapy holds great promise for restoring sight and benefiting patients worldwide.The UW Medicine Eye Institute, the only academic Eye Institute in the five-state WWAMI region (Washington, Wyoming, Alaska, Montana, and Idaho), is at the frontier of developing new techniques to restore vision loss using stem cell therapy.

  • AT HEAR SEE HOPE WE ARE COMMITTED TO OUR MISSION TO HELP FIND A CURE FOR USHER SYNDROME. FOR ALL THE DONATIONS WE RECEIVE, 99% GOES TOWARDS RESEARCH. WE HOPE THAT ONE DAY THERE WILL BE A CURE FOR THE PEOPLE DIAGNOSED WITH THIS DISEASE.