Sponsored by Seattle Children’s Hospital, Hear See Hope Foundation and Decibels Foundation.
Download flyer here
Conference held at Seattle Children’s Hospital, Wright Auditorium
4800 Sand Point Way NE • Seattle, WA.
| 8:30-9:00 |
Conference check- in. |
| 9:00-9:10 |
Welcome by Todd McKittrick, Hear See Hope Foundation |
| 9:10-9:40 |
Overview of Usher syndrome
Dr. William Kimberling, University of Iowa |
| 9:40-10:10 |
Genetics Testing & Counseling
Linda Ramsdell, Seattle Children's |
| 10:10-10:35 |
Q&A with speakers/Break |
| 10:35-11:15 |
Treatments
Dr. Peter Francis, Oregon Health Science University |
| 11:15-12:00 |
Vestibular Testing
Dr. Jim Phillips, Seattle Children's |
| 12:00-12:45 |
Lunch/Networking/Booths (Box lunch - vegetarian or non vegetarian)
|
| 12:45-2:15 |
Panel Discussion – Living with Ushers
|
| 2:15-3:00 |
Breakout Sessions
- “Rap session”- with young adults living with Usher syndrome
- The Scoop on Schools: Accommodations and Adaptations for the Classroom
- Update of the Latest Research – Dr. Richard Weleber, Oregon Health Science University
|
| 5:00-8:00 |
Family BBQ at Golden Gardens Beach/Park (adults $10 each, children (3-10) $5 each) |
Silver Cloud Inn – University $129-$149
www.silvercloud.com
5036 25th Ave NE, Seattle, WA 98105
(206) 526-5200 or (800) 205-6940
*Amenities include hot, continental breakfast, parking, shuttle service, WI-FI & DSL internet access, indoor pool, spa, laundry and new exercise facility. Closest to Seattle Children’s and most family friendly.
Watertown Seattle $139
www.watertownseattle.com
4242 Roosevelt Way NE, Seattle, WA, 98105
(206) 826-4242 or (866) 944-4242
*Amenities include deluxe breakfast bar with scrambled eggs & bacon, shuttle to Seattle attractions and hospitals, loaner bikes to explore the area, secure underground parking , exercise room, access to outdoor pool (University Inn) ,laundry facility, local phone calls, and wireless internet access.
Hotel Deca $105
Hoteldeca.com
4507 Brooklyn Ave NE, Seattle, WA 98105
206-634-2000 or 800-899-0251
*Amenities include wireless internet access, exercise facilities, 100 percent non-smoking accommodations
Nearby off-site volunteer childcare will be available during the conference on Saturday. Please contact us as soon as possible if you need childcare. After June 18, we can not guarantee childcare so please email us.
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