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At Hear See Hope, we love to see extraordinary stories about those living with Usher’s syndrome. Meet Canadian speed skater Kevin Frost, who is one of those stories! Kevin has Olympic ambitions and there are only two things in his way — Usher Syndrome and the International Paralympic Committee’s failure to recognize deaf-blind speed skating as a sport. Kevin’s passion for the speed skating and his drive to succeed have rallied his community around him in support of his bid to get deaf-blind speed skating…
Conners family found out he was deaf at a very early age and were able to take steps to help their son through this difficult process. Through an early cochlear implant Conner was able to hear sounds that he would not have been able to hear. Conner was diagnosed with Usher syndrome in 2004. His parents founded the Hear See Hope foundation to raise money for research to find a cure and to give support and hope to families impacted by Usher syndrome.
The idea to start the Hear See Hope foundation started in August 2004 when our oldest son, Conner (then 5) was diagnosed with Usher syndrome Type 1. We immediately began doing research on Usher syndrome and all eye degenerative diseases. In this we found great hope that we could make a difference and that with funds there will be a cure for Usher syndrome in Conner’s lifetime. We discovered many very helpful and knowledgeable doctors and researchers that are doing all they can to find…
There have been significant breakthroughs in Usher syndrome research in the last few years and there is more hope than ever that a cure is in sight.We are a 501(c)3 not for profit organization in search of funds to sustain the fight against Usher syndrome. Please help us make a difference by supporting us in our fundraising efforts for preventing, treating and curing Usher syndrome.