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June 29, 2018: Kilimanjaro Climb for Usher Syndrome

Conner McKittrick, his dad Todd, brother Cole, doctors and staff who work with Conner, board members, and friends, are busy making plans to climb Mt. Kilimanjaro. The ascent begins June 29, 2018 and the goal is to promote greater awareness of Usher syndrome.

“This is going to be a once-in-a-lifetime experience for all of us,” he says. Conner was diagnosed with Usher syndrome as a child. He will graduate from high school in 2018 with plans to attend college to study genetics.

“Spending this time with the people who have supported and encouraged me these many years – is something I think we’ll all treasure forever,” he adds.

There will be several opportunities to watch the team’s progress via regular video blogs and other social networking updates. The climb is being filmed for a documentary, which will be premiered at an event a few months after it is completed.

If you’re interested in joining us on our journey or want to donate, send an email to

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