Entries by Jeanne

2008/2009 Grants Funded

Vestibular Testing $40,000 Development of Cell-Based Therapies for Usher syndrome $52,000 Building a Foundation for Clinical Trials in Usher syndrome $60,000 Visual Field Modeling, Analysis, and Development of Outcome Measures for Treatment Trials in Usher syndrome $50,000

Development of Improved Visual Field Testing

Development of Improved Visual Field Testing as an Outcome Measure for Treatment Trials in Usher Syndrome (funded January 2007) Grant Summary Usher syndrome is a genetic condition causing both hearing loss and vision loss, and is the most common cause of deafblindness in the Western world.  Some individuals with Usher syndrome have moderate hearing loss, […]

Development of Methods of Usher Syndrome Gene Therapy

Development of Methods of Usher Syndrome Gene Therapy (funded January 2007) Grant Summary Usher syndrome is the commonest inherited cause of combined blindness and deafness.  The progressive vision loss is currently untreatable, although some hearing may be restored with cochlear implants.  Several gene mutations have been identified as causes of the disease, including mutations in […]

Population Genetic Studies of Usher Syndrome

Pilot Project of Population Genetic Studies of Usher Syndrome (funded January 2006) Grant Summary: The research is being conducted at the Oregon School of the Deaf in Salem, Oregon by Dr. William Kimberling from Boystown University. The goal of this study is to determine the frequencies of known Usher syndrome subtypes and their mutations in […]

More Hope than Ever!

Breaking research news – Gene Therapy provides vision to nearly blind young adults” Three young adults with virtually no vision can now read several lines on an eye chart and see better in dimly lit settings thanks to an innovative gene therapy aiming to reverse blindness in a severe form of retinitis pigmentosa known as […]

Hear See Hope Foundation

[youtube]http://www.youtube.com/watch?v=tei05U_lWUw&feature=plcp[/youtube] The idea to start the Hear See Hope foundation started in August 2004 when our oldest son, Conner (then 5) was diagnosed with Usher syndrome Type 1. We immediately began doing research on Usher syndrome and all eye degenerative diseases. In this we found great hope that we could make a difference and that […]

There Will Be A Day

There have been significant breakthroughs in Usher syndrome research in the last few years and there is more hope than ever that a cure is in sight.We are a 501(c)3 not for profit organization in search of funds to sustain the fight against Usher syndrome. Please help us make a difference by supporting us in […]