Entries by y7bchu

September 16 declared Usher Syndrome Awareness Day in Washington State

Washington State Governor Jay Inslee has proclaimed September 16 as Usher Syndrome Awareness Day. Washington joins a number of other states who observe Usher Syndrome Awareness Day on September 16. We spent the 16th filming our Hear See Hope Usher syndrome dance video, which will be available soon. It was a great way to spend […]

Classical Hands for a Cure

What: A classical piano concert benefitting Usher Syndrome. Pianist: Kiera Daley When: April 13, 2017 Where: The Old Rock Schoolhouse, Valdese, NC For more information about this event or to learn more about the Daley family, please visit this page.

Sensation

Thank You for Attending! This event was held October 1, 2015. Renown Seattle Chef Tom Douglas headlined this Sensational Dining in the Dark experience, designed to help raise awareness about Usher Syndrome, the leading cause of deafblindness. Many thanks to those who attended and helped make it such a memorable evening. More info to follow! […]

UW Medicine Eye Institute and the Hear See Hope Foundation

Restoring Vision Loss Caused by Usher Syndrome It is estimated that between 30,000 and 50,000 people in the United States suffer from Usher syndrome, a genetic disorder that causes deafness and blindness. Children with Usher syndrome are born with, or may develop, hearing loss. Then, as these children get older, they develop night blindness and […]